Focus on rare diseases and uncommon cancers

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Meet Corey

Corey is 36 years old. In 2014, he was diagnosed with Stage 4 non-small cell lung cancer ALK+ and given 6 months to live.

"Everyone was in shock", he explains. "I had never smoked, rarely drank, had a healthy diet and I am keen cyclist and swimmer. I thought I was in great health."

Corey’s condition is caused by a rare gene mutation that affects only 1–2% of people with his type of lung cancer. Luckily, recently developed targeted gene therapies are an option for Corey. They are not a cure, but can slow or stop cancer progression. "With two young kids and a beautiful wife, having a little bit more time means everything to me", he says.

To learn more about rare lung cancers, visit www.rarecancers.org.au

Focus on rare diseases and uncommon cancers

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Meet Angus

Angus (second right) was 10 years old when he was diagnosed with Hodgkin’s Lymphoma, a rare form of cancer that affects the lymph nodes. Until his diagnosis, Angus was a typical energetic boy; all blonde hair, tanned skin and a big smile.

After an initial successful course of chemotherapy and a period of remission, Angus’ condition relapsed.

As Angus’ mum explains, “2015 has been a tricky year. Some treatment options have been exhausted and some didn’t work well for Angus.” Thankfully, there are more treatment options to try, and Angus continues his fight with patience and dignity every day.

To learn more about Hodgkin’s Lymphoma, visit www.rarecancers.org.au

Focus on rare diseases and uncommon cancers

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Meet Tracey

Tracey is 48 years old. After surviving breast cancer at age 40, she was recently diagnosed with non-small cell lung cancer called ROS 1+, which primarily affects non-smokers.

Tracey has three amazing children, and before her diagnosis enjoyed her dream job working with children at the local YMCA Crèche.

“I was heartbroken as I didn’t see this coming”, she explains. “I’m currently just over half way with my chemo and responding well.”

The next step is to go onto a trial drug. With the help of Rare Cancers Australia, Tracey is determined to be around to be a mother to her children and to grow old with her husband.

To learn more about rare lung cancers, visit www.rarecancers.org.au

Focus on rare diseases and uncommon cancers

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Meet Josephine

Josephine was born with beta thalassemia major, a rare genetic condition that prevents her bone marrow from producing functioning red blood cells. As a result, Josephine must undergo blood transfusions every 3 weeks to survive.

“It was very difficult growing up”, Josephine says, “not only because I was living with this illness, but because people often judge those who are a little bit different. It’s easy to lose your sense of self”.

As an adult, Josephine has set about helping others living with rare blood disorders. She writes a blog, produces videos and has published a book.

She received her Masters Degree in Social Work, despite her doubters. “So many people told me I couldn’t do things, but just did them anyway. If you don’t see your illness as an obstacle and just live with it as part of yourself, you can overcome anything. You’re not different, you’re just as magnificent as everyone else.”

To learn more about thalassemia, visit www.thalassaemia.org.cy/

is a specialist healthcare
communications and commercialization consultancy
Our priority is to ensure that patients and families affected by rare diseases and uncommon cancers receive the best possible care and support

What's in a name

FOCUS

We work exclusively on rare diseases and uncommon cancers

EXPERIENCE

Our consultants have been working in the field of rare diseases and uncommon cancers for more than 10 years across more than 25 therapy areas

EXPERTISE

Our team includes healthcare communications specialists and consultants with experience in clinical development, marketing, regulatory affairs, forecasting, commercialization, value communications, medical affairs and patient advocacy

INSIGHT

We're not satisfied to adhere to the status quo. We use our experience and expertise to continually look for new ways to promote improved patient care

REACH

Through our offices in Asia, the Middle East, Europe and North America, we can offer clients global reach combined with local expertise

We utilize three key service platforms to promote improvements in patient care

COMMUNICATION

Providing clear and compelling information and clinical evidence to aid appropriate decision making

COMMERCIALIZATION

Supporting every stage of the development of new therapies for rare diseases. From opportunity assessment, clinical programme design and access strategies, through to global launch support

COMMUNITIES

Facilitating collaboration between stakeholders to enhance understanding, promote access to effective treatments and improve patient outcomes

What we say

Download our prospectus to learn more about our values and offerings
Download our prospectus to learn more about our values and offerings
Rethinking rare disease communications during COVID-19
Rethinking rare disease communications during COVID-19
Enhancing the patient–HCP relationship in multiple myeloma
Enhancing the patient–HCP relationship in multiple myeloma
Challenges posed and opportunities presented by rare diseases in China
Challenges posed and opportunities presented by rare diseases in China
Comradis is proud to collaborate with the following organizations for the ultimate benefit of patients across the globe who are affected by rare disease and uncommon cancers
We believe that all patients deserve the best possible care

To learn more about how we can help you to develop and
commercialize new treatments for rare diseases and uncommon
cancers, please get in touch

Contact:

ellie.thomas@comradis.biz